Monday, August 03, 2009
Thursday, July 09, 2009
A Month Already!!
Ben got braces at the end of June and is coping with them ALOT better than his mother expected. The first few days were full of complaints about pain and oral abrasions but we're smooth sailing now!! He barely even realizes he has them anymore. Flossing has become a bit more difficult though and with Ben's very sensitive gag reflex...it's not pretty. We are not gonna push this too much for everyone's sake! Ben's been tolerating the new medication really well after the initial incident and we're slowing increasing his dose at manageable levels. He gained 3 pounds in one month which isn't bad considering the reviews I had read and of course, the age he is at. His appetite still hasn't increased at all. An ultrasound ruled out any stomach lumps and bumps. He has commented that he feels his hand washing compulsions are returning though. For far he seems to be able to control that to a degree. Monday is our next appointment and we'll have to discuss that then. Ben meets 3x/week with an aide provide through Nursefinders to help with his anxiety/ OCD, social and fine motor skills. Thursdays (today) they meet at the Waimea Boys and Girls Club to work on socialization.
Aly is enjoying summer break...although she and Ben are feeling the tedium and boredom of not being able to travel during the summer months. There are not many options here besides beaching...and while Mom and Dad could spend several days a week at the beach...the kids would like a little variety. Christian Sports Camp started up this week, with the theme, "The Great Comeback" and Aly is loving the Bible lessons and songs, interspersed with Soccer lessons by real coaches. She memorized John 14:1-3 and received a sports pin for the effort. The Uncharted Water team comes from the mainland to provide quality coaching with Bible based teaching and life skills. The children can choose to sign up for Basketball, Cheerleading or Soccer.
Ed is working very hard and feeling the pressure of regular church team leading life but coping admirably. He constantly impresses me with what he is capable of and how God is using him. Unable to take time off during the summer, he is (and we all are) looking forward to a vacation to San Diego in October. A glitch in the immigration paperwork means that tickets purchased last November (for a work visa renewal trip to Canada in March 2009) were postponed indefinitely. They expire a year from purchase however, and so thankfully, we are needing to take a vacation! At this time, our visa renewals are in process, but we are not allowed to leave the country. So a trip to the U.S. mainland it is!!
I am going a little squirrelly...missing friends and family. I try to keep myself busy by oil painting and volunteering at the church. I am the webmaster for our new church website... http://www.kalaheomc.org/ Check it out. I know you'll laugh and guffaw when I say that it is hard to live in Hawaii and not be employed. But it truly is...after 3 years I can say that boredom does set in and take its toll. Our computer died slowly after about 8 years of faithfulness and so now I am trying to keep you posted on an antiquated desktop that runs veeeeeeerrry slowly. Hard to upload or download anything (thus no photos) otherwise the whole thing will just shut down.
My garden is trying to survive...the cucumbers were doing so nicely and then a huge swarm of aphids came and destroyed them all. I HAD SO MANY CUCUMBERS ON THEM!! Boo Hoo! My 8 beefsteak tomato plants are as big as the 6 ft. fence but the blooms dropped off and I have very few tomatoes. The green onions, and mini bell peppers are doing really well and I can't decide WHAT my carrots are doing. I still have 3 lemons on my tree...why do they take SO long to ripen? Can somebody give me any advice on how to deal with dropping blooms, aphids and leafhoppers?
We are eagerly awaiting my niece Kailey's arrival on Monday and hope for a great month with her. It will be nice to have family visit again!
Sayonara...A Hui Hou
Thursday, June 04, 2009
The Shed
Not only one...Theron has TWO drills and is apparently ambidextrous!! I was SO impressed!
trying to get the roof on right...it's hurricane proof...right Theron?!!
YEAH!!! And we're done!! It's definitely picture worthy!
Two shed building Kauaian cuties... Thank you Theron!!
(Big THANK YOU to Dad and Eliana for the housewarming gift!!)
Saturday, May 23, 2009
Involuntary Hand Movements
I drove the 20 minute drive home with a keen eye on Ben's hands which had previously been in a constant state of awkward, jerky movements. They were now decidedly silent. Still. No movement. What was going on?? Could they be right? Will I have to eat my silent words? Is this really just another symptom of anxiety? Who knows?
At this point, we've been advised to continue the new drug. I for one am keeping watch.
Wednesday, May 13, 2009
Pray for Ben

I am full of gratitude that I am able to come to you (once again) with this request. We need to amp up our prayer for Ben. As the middle school year comes to an end, we find his anxiety levels increasing as well his OCD. He is curling up his toes and walking inside his sweats, typing with his knuckles, removing the outer casing of a ball point pen and using only the thin refill to write. The other day we spent a fabulous time on the north shore exploring, snorkelling with sea turtles and sun bathing; Ben was so agitated he couldn't enjoy a minute. At one point, Ed convinced him to jump off the Hanalei pier (BIG accomplishment) into the ocean. Ben's anxiety and OCD wouldn't allow him to return to shore because other people had been swimming in that part of the ocean. He started swimming out INTO the ocean around the pier thinking he could swim across the ocean bay to where we pitched our beach camp. They would've never made it. Ed had to struggle in a physical and emotional fight with him to encourage him back to shore. Ed was very frightened throughout the whole ordeal as the battle almost nearly ended in both of them drowning. :` (
Because of this life threatening incident over the weekend, we have decided to supplement Ben's current medication with another med called Abilify. For those of you in the know, Abilify is a newer version of Risperdal with less side effects. We struggled with the decision to add this new med over many weeks, but after the ocean scenario...we feel we have no choice. Abilify should calm Ben and manage his anxiety and compulsions. However the common long term side effects are not pretty: increased blood sugar levels and possible drug induced diabetes, extreme weight gain (40 lbs. in 3 months), increased cholesterol (100 unit increase in a year), seizures and muscle spasms. Most are reversible when the drug is removed although the muscle twitching has been known to be permanent.
Please, please, please pray for minimal to no side effects, especially no drug induced diabetes or seizure disorder (and for a return to healthy mental state). Those of you who know us well, know Ed has diabetes and epilepsy so there is already a genetic factor at play here. For what's left of my sanity, we need some hard core praying!!! I am not happy to walk through this again but will, knowing God is the Lord of Ben's life and He holds us all in His hands.

Saturday, May 09, 2009
Saturday, April 04, 2009
Hanapepe Cubs vs. Waimea Jays


1st inning Aly stayed on the bench...parents are eager to see her in action!

Aly and Isybella...the only girls on the team!! GIRL POWER!!!
Monday, March 23, 2009
Sights around Town
Puakenikeni flowers popular for making lei
Sugar Cane
Blue Ginger
Heliconia

Hmmm...not sure what these shrubs are...
Monday, February 23, 2009
Hanapepe Mustangs Division

Anne and Iain Prance
We met this wonderful couple after a recent invitation to join them for lunch at their "place" in the Allerton Gardens. I had heard of them from a friend and that they attended our church in Kalaheo when they were in town....perhaps once a year. Their real home is in the South of England. Iain and Anne are a wonderfully committed Christian couple and have embraced us into their family when on island. They are truly remarkable and I am blessed everytime we meet. Their passion for Christ is evident as is their love of mentoring others in the faith. Iain and Anne work at different Botanical Institutions around the world...in their "retired" or rather exhausted estate. Poor things! They are as active as ever and are really overworked. Iain (and Anne) are constantly travelling, consulting, lecturing, collecting and studying. Their knowledge and experience is highly sought after. Iain...Sir Iain (as he is known...has been knighted by Queen Elizabeth in 1995) is a prominent botanist and ecologist.
We'll be thinking of Anne as she heads home and visits with the Mellow Birds....and Iain as he heads off to San Diego and then New York.
Sunday, January 25, 2009
Yakudoshi Celebration

So what exactly is a Yakudoshi Celebration? I'm glad you asked...
Bad luck ages are referred to as yakudoshi, with yaku meaning “calamity” or “calamitous” and doshi signifying “year(s).” These years are considered critical or dangerous because they are believed to bring bad luck or disaster.For men, the ages 24 and 41 (or 25 and 42 in Japan) are deemed critical years, with 41 being especially critical. It is customary in these unlucky years to visit temples and shrines to provide divine protection from harm. In Hawai‘i, it has become a widespread tradition among men of Japanese ancestry to celebrate the 41st birthday with a festive yakudoshi party or gathering to ward off the bad luck or disaster that may strike. The birthday person should wear red to bring good health, vitality and long life.
The 41 year-old birthday boy with his party hat and wearing red and black
His cake...

Our neighbours Tsuji and Jeannine
Monday, January 19, 2009
Swimmy the Fish
Long Awaited Grass Pictures
Many of you have been waiting for updated pictures of our lawn...the result of the creative plugging process that took months to complete. Well wait no more.. this...

has turned into this....

El Toro Zoysia grass knitting itself together.

Lemons on our tiny lemon tree...can't wait to make lemonade!

Red and Pink Ginger, Heliconia and pretty red Ti


Egrets in the front yard...
God's promises multiplied in the back yard

We love and miss you all!
"There is a dynamic FREEDOM in living every moment exactly the way God intended for us to live it!!"









Tiny Waterfall by Glass Beach
Tiny Salt Beds 





