Ben's a Free Man!

HALLELUJAH!!! Ben was discharged on Thursday, Nov. 15 from the Family Treatment Center at Queen's Hospital in Honolulu, Hawaii. Wow, how much more formal can we get! He was extremely excited to "break out" and roasted in our rental car for 45 minutes while I packed up the apartment and checked out. Although he is healthy enough to no longer require 24 hour medical observation, he still struggles daily with anxiety and OCD. Ed and I were thrilled to bring him home, but there is still some apprehension on our part. We are now completely responsible for helping him cope and in the continuation of teaching him his own coping techniques. This week we have minimal assistance with Ben but that will increase next week. We will have a team consisting of a autism specialist, family guidance counsellor, psychiatrist, school psychologist, and working directly with us will be a skills trainer, home bound teacher and behaviour specialist. We have an amazing program set up and are just waiting to plug people into it. The woman who will be our skills trainer is in Israel and she returns at the end of this week. When she returns, it is all systems go! I'm confident that the team will meet Ben's needs and that he will be able to quickly catch up with his peers, academically.

Life is returning to normal (can it be true? is it really? am I dreaming?) and it feels so good to be back home and together again as a family.

Coming Home...I Hope

If all goes as planned, I will be bringing my large bundle of boy home this weekend. The doctor's say, he is as ready as he'll ever be. We are still waiting for temporary home bound assistance until longer term ones are found. Hopefully, the OCD will not do too much damage to Ben in a week's time. This is how long we anticipate having no assistance. Well, if anything unforeseen happens or he takes a turn for the worst, at least we know the ropes and have made the relationships. Thank goodness for that! The initial trauma I wouldn't wish on anyone.

Thank you for the hugs (real and cyber). Please continue on the journey with us a little while longer as we transition him back home and into a home bound school setting. Love to you all.

Ben Update

As my friend Xiam suggests...it's been a week Buller, what's the news?

The 4 day pass went well this last weekend although on Monday and Tuesday, Ben was noticeably in need of structure. Behavioural issues that had popped up on Sunday, reared their ugly heads on Monday and Tuesday. There were several threats to return "the child" to the ward early. It wasn't really a threat though. The staff had notified us that if he got to be too hard to handle, we were welcome to send him back. It did enter our minds more than once though. And we were instructed to use it as a tool to curve behavioural issues. Strict limits had to be set. Expectations had to be VERY clear. Yes, there were tears. Ben was so mad at me, he jammed his foot between the wall and the bed and got it stuck! I held my ground and eventually he loosened his leg and followed through on the instructions.

Things continue to go well. Ed and I are learning which actions to take and when with Ben. Ben is essentially well enough to come home (PRAISE JESUS!!) but at present, we have no support structure in place. We have a program for him to come home to, but we are waiting for a skills trainer and home bound teacher to plug into the program. The hospital will not release him until they are convinced that we have strong support in place in the home.

So ideally it looks like Ben will be on his way home in the next week or so. It is so hard to believe! What a long road!